Category: Patient Advocacy
The Ethical Use of Patient Data
Contributors: Anne Kim, Miguel Morachimo and Christopher Scalchunes, MPA Medicine should be developed and designed for everyone. Unfortunately, many of our medical treatments don’t account for the diversity of conditions in our communities. We’re missing out on positive health outcomes because our care options aren’t as representative as they need to be. Our country has a long history of medical and clinical abuse and negligence when it comes to underrepresented…
Read MoreWhy Patient Advocacy Organizations Should Be the Leaders of Clinical Research
Contributor: Anne Kim Data is the key to cures. That holds true whether we’re sharing existing successes in patient care or fueling hypotheses for new breakthroughs. Patient advocacy organizations (PAOs) and non-profit health organizations are constantly innovating to find new cures, which makes clinical data a core part of their everyday mission. Unfortunately, most patient data is currently sourced from the same sites — limiting these groups’ opportunity to fuel…
Read MoreHow Can We Enable and Advance Clinical Research: The Power of Federated Data
Contributors: Dr. Rajni Aneja, Sandy Pentland and Anne Kim As a vital connector of the clinical research world, patient advocacy groups are responsible for setting disease-ending insights in motion. The two main goals: finding cures and ending disease. Today’s patient advocacy organizations (PAOs) are doing amazing things, but there’s still so much untapped potential for your organization. Clinical research is only as effective as the data that researchers can easily…
Read MoreHow Can I Multiply My Impact in Healthcare?
By: Anne Kim, Co-Founder and CEO of Array Insights People want you to be good. The great British actor Sir Patrick Stewart shared these six simple, yet profound words in an interview recently. Stewart, of Star Trek fame, was alluding to a lesson he’d learned throughout his life and acting career. In competitive environments, it’s easy to be conditioned into thinking “everyone’s against me.” We all know that little voice…
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