3 Ways Patient Advocacy Organizations Can Gather More Stories

November 20, 2023

Every leader of a patient-focused organization understands the importance of patient stories. These narratives capture the human voices that inspire your everyday work in patient services, fundraising, and advocacy.

For many organizations, the process of gathering these stories could be more efficient and cohesive. Donor CRMs and manual outreach are a good starting point, but how can you accelerate your patient story management process?

At Array Insights, we partner with leading patient-focused organizations to integrate technology into their mission-aligned activities. Through these partnerships, we’ve gained some key insights on discovering more patient stories – and we’re here to share them with you. We’ll mostly focus on the aspect of gathering these stories, but keep an eye out for future content regarding the management and use of patient narratives.

Additionally, we’ll introduce Tallulah, a next-generation AI patient story management platform. Tallulah helps organizations augment and enhance their patient story outreach, and we’ll explain how you can implement Tallulah to do the same. Let’s dive in!


3 Methods for Discovering More Patient Stories

It can be easy to focus on simply “soliciting patient stories” from your community. While this is important, it’s often more helpful to think of the patient story process as coaching your community to share their stories to help future patients. The patient-focused organization’s role is educating patients on the importance of their stories while encouraging (and even incentivizing) them to share.

We’ve outlined three methods for drumming up more interest, with specific nods to how Tallulah can help in each instance:

Conduct calls to action via email.

Every patient-focused organization has some sort of online community, whether through a forum, newsletter, or email contact list.

You probably send out emails to this community to give updates or ask for monetary donations. Why not also ask them to contribute a different kind of “donation” by donating their patient story? While every organization benefits from monthly donation pledges, a patient story can be used continuously to help fuel mission-aligned activities.

How Tallulah can help: Patient-focused pros can use Tallulah’s AI technology to automate the process of sending out emails and reviewing/approving requests by patients to donate their stories. Instead of manually sending out emails (and relying on humans to sort through the feedback from your patients), you can use Tallulah to speed up your process.

Find storytellers through public social media.

Many patients might already be telling their stories openly on their public social media profiles. By searching for keywords and hashtags on major platforms, you can easily source potential new stories from patients who are already willing to talk publicly about their condition and treatment.

How Tallulah can help: Tallulah helps organizations automate their search for publicly posted patient stories on all major social platforms, including Reddit, Facebook, TikTok, YouTube, and Instagram. Our AI searches for public content and aggregates the most relevant results so that users can more easily find the most compelling stories that have already been willingly shared by the patient. Plus, Tallulah helps you manage the communication process so that two team members don’t contact the same patient twice.

Share patient stories to inspire others to share.

Your existing patient stories are one of the best tools for finding additional stories. As you get more stories, it’s essential to turn them around quickly and thoughtfully, so that they can be shared across your owned channels: social media profiles, newsletters, blogs, etc. Establishing this constant “feedback loop” means you’ll have a steady stream of stories that don’t get stale for your audience.

How Tallulah can help: Tallulah’s Generative AI Copy Assistant helps you draft compelling content faster than before. Think of Tallulah as your “first draft engine,” curing any writer’s block that might slow down the process. Plus, your data and information will be housed in a secure enclave; if you use an open-source service such as ChatGPT, it’s hard to guarantee the privacy of your info.


How Can Tallulah Power Your Patient-Focused Organization?

Stories from patients and caregivers are vital for your mission-based work. However, managing patients and their stories with care and compassion can be time-consuming and challenging.

Tallulah represents an AI-powered solution that can help you maximize the impact of your patient and caregiver stories. Instead of managing a maze of disconnected folders, emails, word docs, and CRMs, you can rely on a next-gen tool that leans on automation and generative AI to help you work smarter.

With Tallulah, you can:

  • Categorize and organize stories with advanced machine learning technology;
  • Easily locate the most compelling stories with elastic search functionality;
  • Use secure generative AI draft content for email campaigns and pitches;
  • Determine the geographic and demographic representation of your stories through a dashboard view; and
  • Measure and track the impact of your patient stories.

Don’t just take our word for it! Here’s what Ricki Fairley, Co-founder & CEO of TOUCHBBCA and a triple-negative breast cancer survivor, had to say about using Tallulah:

“Array Insights is providing TOUCHBBCA with a story management solution to help our patient community and mobilize Black women to participate in clinical trial research. It’s a great example of how innovative AI technology can help patient-focused organizations achieve their goals.”

Schedule a chat with our team to learn more about how Tallulah can accelerate your patient story strategy.